Extra Special Care For Our Youngest Patients

What is NF1?1

NF1 is a rare, progressive condition caused by a mutation or flaw in a particular gene. It is usually diagnosed in early childhood, appearing in an estimated 1 out of every 3,000 infants. A common indicator of this condition is the development of plexiform neurofibromas (PN) or plexiform tumors, which are benign (noncancerous) tumors that can grow on any nerve in the body and can be large or small in size.

What are my treatment options?

Previously, the standard treatment for NF1 plexiform neurofibromas was surgery, but it may not be recommended. Tumors may not be completely removed with surgery or can be closely intertwined with critical nerves and major organs. Now, there is another option for NF1 patients – KOSELUGO™ (selumetinib). It is the first and ONLY FDA-approved treatment available proven to shrink PN tumors.

CareMed is proud to be a trusted pharmacy partner for KOSELUGO™.

CareMed understands that an NF1 diagnosis is overwhelming for the entire family. We help manage treatment by providing ongoing, personalized support to ensure proper testing, medication adherence, and side effect management. If you would like to talk to one of our pharmacists, call 877.227.3405 anytime. We also have a few recommended resources that will provide some extra information and support.

www.littlesttumor.org

www.ctf.org

www.nfnetwork.org

 

1https://www.koselugo.com/understanding-nf1-pn.html#family-commitment