Rare Disease Awareness

We Are Improving the Lives of Patients Battling Cancer, Orphan, and Rare Disease

On February 29th, we celebrate Rare Disease Day on the rarest day of the year. It is an opportunity to raise awareness and show our support for equity in healthcare, access to a diagnosis, and life-saving rare disease therapies. Sometimes these diseases can present relatively common symptoms and can hide underlying rare diseases which can lead to misdiagnosis and a delay in treatment.

Some Stats for Rare Disease*

There are 300 million people worldwide living with a rare disease, which is about 3.5-5.9% of the population

There are over 6,000 different documented rare diseases

72% of rare diseases are genetic

70% of those genetic rare diseases start in childhood

How Can CareMed Help Patients with Rare Disease?

rare and orphan disease caremedEven though a rare disease is only considered “rare” because it affects fewer than 1 in 2,000 people – CareMed is here to help you through every step of your treatment journey.

  • We act as your advocate with your physician, insurance company, and others involved in your treatment.
  • Assistance with copays and out-of-pocket costs if you are concerned about the cost of your medication. Call our Patient Assistance Program (PAP) Team to find out if you qualify.
  • Education about your medication, its dosage, any potential side effects, along with 24/7 access to our clinicians and pharmacists.
  • Free shipping via Fedex. If you signed up for our texting program, you will be texted your tracking number before we ship.
  • When it’s time for a refill, we have you covered. We will send you refill reminders and call you to schedule your refill seven days prior to your refill due date.

 

Let’s Get Social

Rare disease day logo 2To show your support for Rare Disease Day or if you are a patient with rare disease, go to https://www.rarediseaseday.org/downloads/ and download a social media profile frame to add to your profile picture on social media. Make sure to tag CareMed. We would love to see all of your colorful frames.

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If you are a provider and would like to refer to CareMed, click below for our order forms.

*https://www.rarediseaseday.org/what-is-a-rare-disease/